One autistic broad's take on all kinds of stuff -OR- What the world smells like when your nose is this big

Monday, November 22, 2010

November 22nd, 2010

*Questions from Asperger Adults*

1) Did you always have some sense that you were different? 

 

 

Yes. I was always an odd kid. When it came time to go to kindergarten, I gave my mother every excuse in the world why I couldn't go. I wasn't afraid of school, I just knew in my tiny little soul that it wasn't for me, which proved to be true across my whole life.  Grade school was a nightmare because I never understood why it was I got picked on so terribly. I wanted more than anything to "fit in", or at the very least not be singled out. I seriously had zero clue why I was on the receiving end of all that taunting.

 

 

2) Was feeling different a source of difficulty for you or easy to accept? Why? 

 

 

You know, it never really occurred to me the two were connected. There was a part of me that knew I didn't fit in, that knew I wasn't like everyone else, but I couldn't define it back then.  Being an odd duck and feeling like I didn't belong were in no way related, because to me, my actions were perfectly normal.

 

 

3) If you were diagnosed or self-diagnosed in adulthood, what do you think, if anything, would have helped you if you'd known at a much younger age? 

 

 

I probably would have cut myself a lot more slack. I'm pretty sure it would have changed the types of jobs I went for, or the kind of secondary education I attempted.  The biggest part is the shame and guilt I carried for years--that crap is heavy! And it does a lot of damage.

 

 

4) If you could find support now as an AS adult what would you like it to be like? What kind of support (if any) do you feel you'd benefit from and why? 

 

 

I want to curl up in a big ball and cry like a baby and be told it's okay to take a rest--to not think about what's next, what's now, what was.  The best thing possible would be some kind of affordable therapy. I don't think shrinks and pills are the answer to my problem, but having a little help to navigate and recalibrate would be awesome.

 

 

 5) What do you think are the major differences in females with AS as opposed to males with AS?

 

 

I'm too new to Autism to know, and I haven't met any people with Asperger's yet (Helloooo... Fortress of Solitude?), though I'm pretty sure females are harder to spot than males from what I've read. 

 

 

6) Are you happy and self-accepting? Do you still have times of pain or distress about what AS means in your life?

 

 

I'm a fairly optimistic person.  That's surprising to me because I have been torn down a lot in life--bosses, family, friends, teachers. But I also know it's not totally their fault. They were in a bad situation because they didn't know why I did the things I did, or how to help me, any more than I did. Education about people with autism is really important, especially in the schools. I try very hard not to dwell on the past and try to remember that I'm not the only person in my history that suffered because of my condition. There's a part of me that feels for my parents and teachers because I don't think for a minute they wanted to dislike me or disapprove of me. I had just as many endearing qualities as I had frustrating ones.

 

 

7) How does AS manifest in your life for you? Do you feel lonely? Do you have difficulty socializing? Do you ever feel a desire to socialize but find it too much?

 

 

I think it manifests in a lot of ways, but the biggies are anxiety and introversion. I have moments of loneliness because I do isolate a lot, but at the same time, you're asking if I dislike something it's in my nature to do. So, I'm not really too upset about being alone, but do have moments where I wish I was a bit more extroverted or thought to pick up the phone and call people.  

 

 

8) Do you have any issues with anxiety? If so, how does it affect you and what do you do to cope?

 

 

Big time. I think it would be far easier to be phobic, because phobias are fixable.  What I experience is more like a low level constant fear of the great unknown--the possibilities more than any distinct thing or action--and also what I know will happen inside my head, that I'll get overwhelmed.  Before I knew about Asperger's, I'd wondered if I was agoraphobic, but it made no sense because I have no problem going to the grocery store once a week, or going out on occasion.  It's the oddest thing, because I also don't want to be home all the time, it's just what I do and where I feel most comfortable. If I spend too much time away from my house I get really wound up and unable to handle the stress and rush of constant input.

 

 

9)Do you have issues of sensory over-load? If so, how do they manifest and how do you cope?

 

 

Definitely. The outside world is a menagerie of spiraling sounds and sights. If you've ever seen a movie where they showed a person spinning in the street while every noise and action stood out--and know they presented the scene that way to show how it freaked the person out and confused them--then you know what it feels like to be me.  The only way to cope with it is to be prepared. I'm not the type of person to mad dash somewhere on a whim. I like plans, they allow me to get centered and make sure I'm ready to go on time and know what to expect. Being "out there" is different for me than it is for most people. I'm also that way at home. If I'm expecting someone, a knock on the door or a phone call is no big deal, but if it's unexpected I freeze up. I've been known to go hide when someone knocks on the door or turn the ringer off on the phone. I'll even let the battery die on my phone and not charge it for a few days. The important people in my life are all connected due to this fact, so if something big happens, there's always a way to get me information.

 

 

10) As a female with AS what do you most want NT's to know/understand about you?

 

 

I'm not mean, I'm not disinterested, I'm not weird. Mostly, I'm just like you.

Friday, November 19, 2010

November 19th, 2010

The problem with sharing the thoughts and experiences I've had over the course of my lifetime, is that it gives me some serious anxiety. I'm really afraid to come off looking like a loser, or a freak, because I've put so much energy into blending. But the whole point of starting this thing was to tell the truth about my life as I know it--and in some eyes, freak may be exactly how I'll look. Talking about "it", whatever the "it" of the day turns out to be, is the best way for me to show my experiences are perfectly normal, even if only to me.

The struggle to keep a roof over my head since I was seventeen hasn't been an easy one. I'm a trooper and learned to fight pretty hard to keep it all together without complaints. For all the years of people looking down on me or thinking I was lazy or crazy, I don't have the words, I think, to explain how little that noise helped the situation or made me want to try harder, but I'm going to explain it the best I can. I do fear that I'll also come off all "doom and gloom" when writing these long rants and face the "get over it" perspective from others, but the reality is, things have always been incredibly hard. I don't look at my situation and want pity from anyone. Pity makes me angry and it isn't the point at all. I only want to share the struggles I've endured because I know other people are experiencing them, too, and admitting to those struggles can help everyone understand them, not only the Autistic person.

 Had I been diagnosed with HFA back in the 80's, or even with Aspergers in the mid 90's, I'm sure the course of my life would have been different, if only a little easier to navigate. The percentage of diagnoses between men and women is pretty unbalanced, but there may be reasons for that other than the actual disorder itself. A woman who's perceived as shy and disinterested in social events doesn't stand out the way a man does in today's world, where eye contact and interaction is expected. Abuse in relationships shares the same problem. While boys are expected to join in and be decent at team sports, girls typically aren't, so the existence of dyspraxia is also easier to detect in males. If you ask me, there's an incredible imbalance in detection due to societal gender roles and stereotypes. There are going to be people who say I was better off because I was able to get by with some of those traits without standing out, but the opposite is true. It prevents a person from getting the answers they need and a diagnosis that can be critical to moving forward.

I've had serious low points in my life--sleeping on friend's couches and even staying in homeless shelters when things fell completely apart. It's been years since I've had to deal with those problems, more than a decade, but it wasn't easy to get where I am now and I haven't done it alone. Employment has always been hard to keep a handle on. There are a handful of jobs I was fired from when I was young, but the majority I quit (by simply not showing up) after the anxiety, paranoia, and frustration became too much for me to handle mentally. I've also been in and out of college more times than I care to admit, but I've always tried, and kept trying. That's the point of the experiment, I guess, to keep fighting, because nothing good can really happen if you're not reaching for it.

The truth is, I am not a quitter. Nor am I a victim and wouldn't ever want to be seen as one. I'm a person who has a highly limited ability to deal with the the everyday things that happen outside the four walls of my home--that's simply life as I know it. The world isn't "out to get me", even if it can feel that way when looking at the long list of basic expectations a normal life entails. I will never stop trying to meet those basic expectations, nor will I point the finger and pretend it's everyone else's fault if I fail. Whether or not I succeed or fail will be a direct result of the brain I was born with, and that responsibility lies on no one. Accepting failure as some sort of flippant personal choice I made isn't going to fly with me because I want desperately to succeed. My very best is all I can be expected to give--and however that turns out, well, it's what little old me and the world gets.

I think the lack of resources for adults with Autism is something that cripples many people before they can ever take flight. It's not too much to say there are adults that need help managing daily life and their inevitable breakdowns when they don't get that help, because getting by can be too hard without help--I can admit that shamelessly. The focus on school age kids and early intervention is fantastic when there are services available, but much of the time a diagnosis and therapy run financially in the thousands. There are people out there not getting the desperate attention they deserve because they don't have the dollars, or they're just too damn old to be bothered with.

For the record....I am not a lost f*cking cause and I resent the fact I'm seen as such by the powers that be.

*Ahem*

Anyway, moving on. The only reason I don't live in a cardboard box right now is because I wound up married with a few kids, then divorced, and have a hard working ex-husband who's been downright admirable for making sure we're all housed and fed and happy. As much as we struggle to communicate and he gets on my damn nerves, he's also a hero of sorts. Before I had children, I could manage work and bills and the basics. After I had children? No way. There are loads of single mom's who go to work everyday, bundle up the kids and take them to daycare, fight traffic, slog for nine hours in some factory or office, then pick up the kids, feed them, do homework, clean the house, do all the laundry, the list just never ends.....they're heroes to me as well. I can barely get through most days and I seldom leave my house. There's already a low level anxiety about where my life will take me when my kids are grown and (hopefully) off to college. I envision a small apartment and a quiet nine to five and a cat and evenings spent reading. That's about the gist of what I can pull off when I look at my future from where I stand today.

It's the reason I have such hope that finally getting an Aspergers diagnosis can begin to change things for me as new realizations about my nature open up to me. I don't want to do what I do now! That's the biggest misconception--that I'm somehow content to be in my cave all day and I don't need or want anyone around me, and, "Oh, well, lovely cat you have there."

It's so untrue! I crave people. I just seriously suck at relating to them and sustaining friendship. I seriously suck at having to leave my house everyday. Hell, I spend three days gearing up mentally to walk to the post office. I can't begin to tell you what a toll that takes on a person's ability to manage their life. My mother used to tell me how my grandmother spent most of her life inside her kitchen, smoking and singing gospel songs, staring out the window. Part of me believes her life, like mine, was a prison. And for most people, breaking out would be as simple as walking through the front door. So I completely understand that it's hard to envision me as "trapped," but I do feel that way most days, and yes, it sucks giant heaps of dirt. Hope, enough hope that I can somehow bend the bars and squeeze through enough to feel some wind on my face, because I found out why I tick, came just in time to keep me from throwing in the towel altogether.

I recently remembered I'm fighter, and I have no intention of taking the blasted gloves off.

Thursday, November 18, 2010

November 18th, 2010

I had to take a break for a couple days. It seems I wrote myself into a corner and had to shake it off. It's not so hard to think about the stuff I want to say in this blog, but it's fairly exhausting to put those thoughts in some kind of coherent order and use the right grammar, punctuation, etc. The same things happens to me when I write fiction. Things seem to go along smoothly for a month or two before I suffer from random burnout. When that happens, even looking at a manuscript can give me a negative physical reaction and I can't seem to face the idea of typing a single word let alone a sentence. It can take an entire month for me to get back in the groove.

I'm used to the waves by now. Balance is practically non-existent in my life. I usually don't eat anything before noon or 1 pm. Reading signals from my body is a complete crap-shoot. I can sit down to write something or surf the net and by the time I look up, four hours have passed, I'm practically dying from bladder torture, my throat is dry, I could use a snack, my spine hurts from heavy focus and not moving around. It's a real mess...lol. I can drink two pots of coffee before lunch and forget to eat anything. I'll stuff myself in the afternoon and forget to drink any water. And people wonder why Aspies suffer from stomach problems? Pssh. No surprise here. The really frustrating thing is I know I do it. I just can't seem to think of it in those moments to correct it.

One of the problems I seem to be having the last few days is acceptance of all these idiosyncrasies of mine. After two really bad days of unexplained depression and hopelessness, I picked my arse up off the sofa and went to the library to get my first Aspie book. The introduction from Michael John Carley brought tears to my eyes. There was nothing particularly emotional about what he was saying, it's just the similarity in our situations that struck me. He recognized his symptoms while trying to get help for his son. The same thing happened to me. He had a hard time accepting it, to the point he took a 5 day vacation alone to surf and watch people. I completely understand how facing an Asperger diagnosis can force a person to step outside their situation.

As much as I believe having an answer is a real saving grace for a person who has an Autism Spectrum Disorder, there are other things that go along with finally having those answers to the why's in their life. While the experience is different for everyone, I realized, just yesterday, that the sadness I feel is related to the fact I'm going through a grieving process. Since I started this blog a couple weeks ago, I've been thinking about "it", talking about "it", and all of my anger has bubbled back to the surface.

When I was told last year that I had AS, I thought, "Cool, that explains issues A thru W." But afterward I took three steps back and went on my way, back into my life, my world. There was a certain amount of denial there I wasn't aware of. Accepting that diagnosis, really admitting it in my core and knowing there's no "fix" makes me spitting mad. It's as though I have to admit to myself that my hopes of being normal died and they were cremated and there's no bringing them back. That's not easy for me. I'm not the type of person who can't solve a problem, so wrapping my head around the fact that it's permanent is stressful. Sure, I can find ways to deal better with the negative aspects, but I'll never be anything but ME. Aspergers is not separate from who I am, it is who I am and I have no choice in the matter. I have to spend my entire lifetime experiencing the world differently than other people get to, and yes, it really does chap my ass, because I never asked to be different.

This paragraph from Aspergers from the Inside Out really struck a chord with me~

My movements were slow, more careful and methodical than others', relaxed in contrast to the bodies whipping back and forth. Yet, oddly, few people bumped into me, and I began to feel like a ghost that no one saw. I walked the room, climbed up to the many floors, and viewed the ground-floor scene of tourist masses from many vantage points. All the while I was slowly taking mental notes; notes that weren't as smugly jotted down as they'd been in the past. For as I watched the dictionary of non-verbal communication flowing back and forth, I was hit fully, finally, that what separated me from them wasn't cultural. It never had been. It wasn't intellectual. It never had been. It was bigger than that. Staring into that sea of abandon, I knew.

I did feel something similar to that before the psychiatrist ever said, "Yes, you do have Aspergers."

I've felt something similar to that in countless moments that span thirty-seven years. I love it when people roll their eyes and say, "Every kid feels different, every kids thinks they must be adopted or an alien." I dare say it's not the same thing a person with Autism feels. Sometimes, none of us feel like we belong. Sometimes, we all get confused. But knowing in your core being every second of the day that you are not like those people, is different from what the average bear experiences. It's not lack of belonging, it's a factual separation.

So yes, I think it's probably pretty obvious I'm stuck in a grievance pattern. I've gotten past much of the denial, but I'm still dealing with the anger, bargaining, and depression that comes with finally accepting it all. I'm looking forward to the kind of acceptance that's free of negative emotions, and I think the best thing I could have done for myself was start this blog, get reading materials, and decide to make some sort of plan for my future (though it's definitely in the rough draft stage). This all feels akin to the first step in a treatment program, because I have to admit I'm powerless to change what is, I can only work toward living my best life knowing that I am never more than a few stages from a meltdown--but it can be managed if I try.

One day at a time, right?

Monday, November 15, 2010

November 15th, 2010

 *Discovery Criteria for Aspies by Atwood and Grey*

Lest certain things be misunderstood, such as "A qualitative advantage in social interactions," remember to keep these things in context. He's not talking about blond cheerleaders. I've added short answers as these apply to me.

A. A qualitative advantage in social interaction, as manifested by a majority of the following:

1. peer relationships characterized by absolute loyalty and impeccable dependability
*Absolutely, in my case.
2. free of sexist, "age-ist", or culturalist biases; ability to regard others at "face value"
*If a person is interesting, I could care less if they're from Alpha Centauri or have three eyeballs.
3. speaking one’s mind irrespective of social context or adherence to personal beliefs
*I'm certainly not one to follow a hive-mind perspective or join in mob thinking. I do have a tendency to say the type of thing other people may be thinking, but won't say themselves.
4. ability to pursue personal theory or perspective despite conflicting evidence
*I often look at things from all angles, and can appreciate information that doesn't match my position.
5. seeking an audience or friends capable of: enthusiasm for unique interests and topics;
*Absolutely true. I have a hard time with people who share nothing in common with me.
6. consideration of details; spending time discussing a topic that may not be of primary interest
*I do get fascinated with tangents.
7. listening without continual judgment or assumption
*Also absolutely true. I need the whole picture before I decide how I feel about something.
8. interested primarily in significant contributions to conversation; preferring to avoid ‘ritualistic small talk’ or socially trivial statements and superficial conversation.
*I live for intellectual discourse and debate, and suck at the, "How have you been?" portion of conversations.
9. seeking sincere, positive, genuine friends with an unassuming sense of humor
*This is true for most people (I assume), so yes, of course.


B. Fluent in "Aspergerese", a social language characterized by at least three of the following:

1. a determination to seek the truth
*Almost compulsively, and I'll keep asking questions until I have the closest thing to it.
2. conversation free of hidden meaning or agenda
*I abhor playing games with people--it's incredibly annoying.
3. advanced vocabulary and interest in words
*I believe this applies to me, yes. I've always had a wide vocabulary, I just had to learn how to use it.
4. fascination with word-based humor, such as puns
*I'm inclined to be laid back concerning puns?
5. advanced use of pictorial metaphor
 *The world really IS a stage.


C. Cognitive skills characterized by at least four of the following:

1. strong preference for detail over gestalt
*Things that are difficult to clearly define frustrate me to no end!
2. original, often unique perspective in problem solving
*Absolutely! And often very efficient.
3. exceptional memory and/or recall of details often forgotten or disregarded by others, for example: names, dates, schedules, routines
*Absolutely--I also remember things no one in their right mind would have cause to remember.
4. avid perseverance in gathering and cataloging information on a topic of interest
*This is me to a fault.
5. persistence of thought
*When I'm anxious it's the worst, it becomes almost obsessive.
6. encyclopedic or ‘CD ROM’ knowledge of one or more topics
*I tend to be a generalized know-it-all, but I definitely have strong areas of interest.
7. knowledge of routines and a focused desire to maintain order and accuracy
*I'm very rigid in my expectations and what goes on in my surroundings.
8. clarity of values/decision making unaltered by political or financial factors
*I have a very strong sense of ethics/morality/justice and it seldom bends.


D. Additional possible features:

1. acute sensitivity to specific sensory experiences and stimuli, for example: hearing, touch, vision, and/or smell
 *Yes, yes, yes!
2. strength in individual sports and games, particularly those involving endurance or visual accuracy, including rowing, swimming, bowling, chess
*Mine happen to be Swimming, Golf, and Darts, etc. but I really concentrate. I certainly stink at team sports.
3. “social unsung hero” with trusting optimism: frequent victim of social weaknesses of others, while steadfast in the belief of the possibility of genuine friendship
*Sadly, this is very true. I don't tend the good relationships I should and often find myself in bad relationships far beyond their expiration date.
4. increased probability over general population of attending university after high school
*Should have been, had my social and introversion issues allowed for it.
5. often take care of others outside the range of typical development
*Also true--I'm a sucker, it seems, for people who mismanage their lives because most of it seems so simple to me. I think, "If you would just (insert decision/action) things would be so easy." I often have to remind myself not to be concerned with the lives of others and focus on where MINE isn't working. I've learned most people are going to do what grooves with their personality/history no matter what you say to them, so it's a lot of wasted energy on my part.

Sunday, November 14, 2010

November 14th, 2010

Music is one of those "noises" that keeps me sane in my everyday sludge. It's a real lifesaver when other sensory input overwhelms. As I write this blog, I'm reminded of last evening~ I was sitting at my desk trying to read something online; Sponge Bob's voice flowed from an upstairs TV, my daughter tapped a pencil on a pad of paper behind me as she did her homework, a dog barked a block away, a car passed every couple minutes, the fan in the PC whirred, the refrigerator kicked on...

Most people can drown out everyday sounds such as those as they become accustomed to them. I cannot do that ever for any reason. Every once in a while I think about J.K. Rowling locking herself in a hotel room to finish the end of HP 7 and Oh My God do I ever understand why that could help a person complete a project. Those noises I hear don't combine to create something pleasant the way music does, obviously, so the choice for me is an easy one. In those times I'm wanting to concentrate, the ear buds have to go in and the iPod goes ON. The singer is little different than Sponge Bob, the drums are the tapping pencil, the chorus similar in cycle to the cars, but it has a totally different effect on me (as it does on just about anyone else), and it's essential.

As with most things in my life, I have very narrow interests in music, and each individual artist I like represents a particular year and state of being. The only album I listened to for the first six months after it released was Pearl Jam's Ten (It reminds me of bullying and neglect). In 1994 it was Green Day's Dookie (Spite and rebellion), and six months after that I picked up Nirvana's Nevermind (Utter disenchantment, all the way). I still listen to those three albums on occasion, but very little else that came out around that time. Entire albums represent an all encompassing picture and clicking-slide-disk of memories, sort of a definition and list of snapshots on whatever "section" of life I happened to be dealing with at that time--also defined as a particular developmental level, I guess. I'd be bothered by the amount of science I apply to it if I thought for a second it lacked emotion, but for something that can be charted and graphed, there's nine tons of invisible feeling where the lines should lay.

From age ten to age twelve I had Michael Jackson's Thriller (I certainly sensed his fear of others back then), Cyndi Lauper's She's So Unusual (Innate strangeness), Phil Collin's No Jacket Required (Unapologetic sense of humor), and nothing else unless it was a one hit wonder on the radio. At fifteen and sixteen, It was Guns and Roses Welcome to the Jungle (Shameless violence and drugs (curiosity at that point)) and  L.A. Guns' Cocked and Loaded (Melodramatic depression and stage drama). At seventeen it was Danzig's self titled album (Vengeance, futility, and little else)...and on and on that list goes.

I can't pretend to be a music aficionado in any scope of the word. While I have 17,000 songs on my PC and know a lot of information about various bands from the 80's and 90's (it's a compulsive collecting issue, as with DVD's I'll never watch more than once, or books I've never read but have to own, etc.), I listen to only ONE artist regularly--and that's Sting.

I wouldn't say I'm obsessed. When you talk about unrealistic schizoid issues, this girl ain't guilty at all. If I met the guy, I'd certainly want to shake his hand and say thanks for the music, but I wouldn't expect to be his pal or want a lock of his hair. For whatever reason though, when I first hard the song Syncronicity ll way back in the early 80's, I latched on for dear life. It could have been the lyrics that got me...

Another suburban family morning
Grandmother screaming at the wall
We have to shout above the din of our Rice Crispies
Can't hear anything at all

Since then, I've gone on to collect every album in both The Police and Sting's discography. I even have foreign editions and bootleg studio recordings and various concerts. I've heard each one of those songs thousands of times and never tire of them. Often when I'm writing fiction, I have to play either On a Winter's Night or Mercury Falling. They're the only two albums I can concentrate to (for the last year)--every other song in the Universe in those moments would normally be an utter distraction. If I don't play Best of the Police when I clean my house, I'm slow as a slug or reluctant to do anything at all.

Stranger still, every album I listen to has a few numbers attached to it. If on a Winter's Night plays at volume 15 and is around 51 minutes long and was released in 2009. Ten plays at volume 16 and is close to 53 minutes long and was released in 1991 . Nevermind plays at Volume 18 and is about 42 minutes long and was released in 1991, etc., etc., etc.

There's no way on God's green Earth I'm going to be able to explain why that is. I'd have to be able to explain it to myself before I have any hope of letting another person know why or how that particular quirk evolved. It just IS to me, and it's perfectly normal from where I sit. There have been many occasions I've had my feelings hurt in various blogs or chat-room comments because I am so one track mind about it. Some people don't understand that narrowness of interest, or the tunnel-vision I experience fighting my way through each and every day. And the good news is, I get over it pretty fast because I don't expect anyone else to understand how I operate. Really, how could they unless I ran around whining about me, me, me all the time?

I realize the cyclone of information that twirls around inside my head whenever I approach something would probably sound exhausting to other people if I described it, and it really can be sometimes. There are days I fall into bed at night and could almost cry because it's finally dark and silent and it's just what I need. There are other days where life is overwhelming right from the jump and I hide away for hours in a room with a laptop and a good book. Again, I know no other way of being so it's something I have to deal with. There is a constant battle that goes on inside my head over what I think is "normal" and what isn't. It's a coping mechanism that allows me to be perceived by people I meet on the sidewalk as "just like them".

One of the reasons I like the radio on occasion, is that each song I've heard over the course of my life recalls a distinct time and place, even a smell or emotion. It allows me to step outside of the moment I'm in and wander off into my history and "my world," which can be an immense stress reliever. Strangely enough, the only time I break out of my routines and do something different (like turning on the radio or listening to 'Madama Butterfly' rather than hitting the same button on the CD player) is when I'm over stressed and I've exhausted my go-to-list of usual chaos blockers. Songs can be akin to reading a book--a grisly haunting or an eastern beach, depending on what a person needs--because a good song will tell a story before the last beat rolls around. Sometimes, not making sense makes sense.

Music can be a lifeline, a friend, an aspiration, a nemesis, an art, a science, an emotion, a million other things....to absolutely anyone, not just this girl.


Saturday, November 13, 2010

November 13th, 2010

Since my main focus in life is writing fiction, we all know I have to talk about it. So, I'm going to wax poetic with abandon and zero apology since you haven't had to listen to me ramble yet...

*This is the moment where you thank the flying spaghetti monster it's only going to be once today*

When I started writing three years ago, I had no clue how awful I was. Really, I read and reread the stuff and simply could not see why it didn't work. I'm going to tell you straight away, that's pretty normal in itself. I think the majority of my experience with learning the craft of writing follows a predictable time line. The writing I'm doing now is far and above what I produced then--through countless hours of practice--but we'll get to that later. Right now I want to talk about what I think are the hardest parts of any creative endeavor, and also why autistic people can be so good at them.

*Pardon me while I ramble--we'll get there*

Predictably, my first crushing reality check came the first time I let someone read one of my stories. Criticism is not my kind of hang-around-pal to begin with, but it kept showing up on my doorstep nonetheless. There was a set of skills I had to learn, I soon realized, if I wanted to be able to interact with other writers enough to improve my work. If I have to admit it, writing finally taught me to better accept criticism in all aspects of my life. If I have to admit to the fact a group of writers taught me to temper my habit of seeing things as black and white, and learn to appreciate more gray in the world (even at age thirty-six), I have no problem doing to that, either. How did those two things happen? A year ago, I found myself a new writer-friendly web home and water cooler. Because it wasn't a face to face group with a bunch of strangers, the real challenge in the beginning was, I had to be "nice" or I'd get booted.

Nice was not something I'd been much of the time, and I could have cared less about it, but now, nice is something I'll carry with me for the rest of my life. I was there to learn so I played by the rules. Most people are capable of polite and I certainly was, too, but I was't the type of person to hand out web hugs and say flowery things before I was a member of that community. I certainly wasn't the type of person to filter my thoughts--it was just as likely I'd kick the garbage cans on a sidewalk or tell someone I thought they were a useless *expletive*. I'd have chewed my own arm off rather than NOT tell a perfect stranger exactly what I thought if the urge struck me, and that's only because a mouthful of arm was likely the only thing that would shut me up. So there's another few tools picked up on the fly that I need if I want to get by in publishing--my interactions there had, and still have, just as much to do with writing books as they do with learning to be.

Beyond criticism, warm-fuzzy feelings, and learning to shut my trap when I disagree, there are things more powerful I happen to still be learning. Those first few rounds of critiques made me realize I'm a rusher when I tell a story--I tended to be that way in my real life so it made sense to me when it came up. The hyper focus and accuracy which is often common to people with autism is no different when trying to create a piece of literature. It doesn't necessarily want to bend to possibility; it doesn't want to give in to things unnecessary or descriptive; it serves the Gods of Utility. Even when I write these blogs, I have to start them a day or two in advance so I have enough time to go back and expand upon the ideas I present. It's often said that autistic people have a hard time imagining things. For my part, I have an unusual imagination that tends to be stubborn when called upon. The inside of my brain is a place of crazy snapshots and made up words and awe inspiring sounds, but they don't want to build a story. Words, one after the other, through trial and error, are the only way for me to do that just like anyone else. But slowing down in my judgments, how I express myself, how I approach a problem, have all been good things for me. Patience is skill I've picked up on in spades.

In my early fiction, I left out huge chunks of the most important ingredient--the characters. They were one dimensional by far and lacked realistic emotional responses (it's probably not hard to imagine why that was). The only way for me to cure the ailment was to learn "people" again and I dove straight into the assignment. Once an idea strikes me, there can be a lot of fun in realizing there's a new view of an assumed thing waiting for me to find it, so that keeps it from seeming like work. It removes the drudgery another person might see as a hassle and it becomes a challenge.

For all the years of people watching I'd done, I had a set perimeter of things I chose to notice. While I'm uncanny at spotting when someone's cut off half an inch of their hair, and know by heart what kind of beer they drink on what day, or the fact they always order a tuna sandwich with pickles at a certain restaurant, there are important things I was oblivious to. And while I do pay attention to facial expression and voice fluctuation, I never qualified those sort of things in concert with the way those people reacted emotionally and mentally to changes in conversation topics or bits of information they'd not heard yet. I never made a real effort to "feel" people unless their emotions were obvious and slapped me in the face; anger, despair, elation, etc. Those small shifts in response as things progress are just as important to building a particular character as knowing the guy in the bowler hat smokes a pipe and likes pineapple candy. Writing has helped me to understand the subtleties of the human condition.

It took reading endless stacks of books in an entirely new way for me to understand what actually happens in those seemingly endless pages of a novel. What one person can meander through like a winding country road, I want to ride a rocket straight through so I can get from point A to point B.....because it's efficient and makes the most sense, right?

Right?

SO not right.

Good fiction, as I've come to understand it, is like a dance when it begins. It's not only about the cast as they're printed in the program. One ballerina flits onto the stage and she spins and spins until you think she'll fall, and then a few more come streaming from behind the curtains. An orchestra strikes up and the violins play first, then the cellos. Before I know what's happened, half the night has passed--the kettle drums pound and the conductor is in a fervor and I'm watching the dancers leap and all the arms as they fly across the instruments and I see the people in the audience lean forward in their seats while the tops of their heads buzz with electricity, but....it's also completely silent. The only thing I really hear are the words slipping through the air and wandering away. They climbed in my eyes and stirred the hot soup in my brain and of course I set them free so I could move on to the next row. THAT is how I want to write, and I want to stick around until the show stops and it's time to turn down the lights and wander home, hands-in-pockets. There are too many things to miss if you don't keep to the show and stick it out.

I was really reluctant to share the following cluster of sentences, but I'm going to anyway because I decided this place would be my No Fear blog. I went through my old stuff and found something I typed into another blog I had back in 2005~

I have to tell you all because i'm honest . Gee-willakers.  Here is the crux. I usually love to paint. More than I love other things. I have no art training though.

Golly Gee indeed! ( I still cannot believe I said that) Was that as painful for you to read as it was for me to share? Needless to say, I've come a long way since those early days of crux. I think one blessing that can be pulled from having Aspergers is my ability to rapidly absorb information. For a girl who couldn't diagram a sentence in grade school (and I still can't, mind you) I don't think I'm doing too shabby. But ultimately, my opinions about what makes autistic people so good with creative endeavors have little to do with skill and everything to do with communication. It's not surprising to me whatsoever that the internet opened up new worlds for me. I was incredibly solitary and limited in my exposure to new ideas before I got online. One of the reasons I chose writing to begin with was the realization that I could say all the things in my head on the screen better than I could face to face (though I admit, that has also greatly improved).

The best part? *Gasp* There were actual people out there willing to read what I had to say!

I don't know the kind of frustration a person who can't speak feels. I'm very high functioning nowadays so it's not impossible for me to carry on a conversation with my neighbor or the gas station attendant, even if it's uncomfortable at times. But people speak the things they can't say, and transfer the emotions they feel but can't express, through words and painting and music all the time. Colors mean different things to different people just as sounds do. We all pick out separate details when we look at the autumn leaves drifting from a tree. While many people write off that visual as simple and think, "Huh, pretty," I can get stuck watching them fall, seeing the way they dance together toward the ground and find a pattern where there is none. Imagining them finally free from the place they were stuck, finally able to meet each other on the ground, finally able to touch and not be so alone. The metaphors and similes any author uses relate to the way a thing was/can be perceived, or the way they want a reader to visualize/feel.

It's the tidal wave of information I constantly absorb and how I relate the data that enables me to write fiction, not my stubborn imagination. I'm still able to create a unique picture from the words I choose when I stop and dig through the Filofax in my head--and those words absolutely do relate to my experience as a human being with a warm, beating heart. It's true that I can't speak for other people as to their creative process, but again, it's not hard to imagine mine is very different from another person who has an Autism Spectrum Disorder. We sometimes communicate emotions that aren't obvious, because from the outside it may appear as though we don't always have them, but we definitely do in our own way. The world needs only to hush and sit in their chairs so the orchestra can start to play, and then they'll feel them, too.

Friday, November 12, 2010

November 12th, 2010

This is an Aspie quiz that can be found online. I suggest doing this if you suspect you may have Aspergers. The results can help you make the decision whether to seek a further professional diagnosis or not. (And, we all know this test means kibosh in the real world, right? Okay, carry on)

My own score (for comparison) was as follows:

Your Aspie score: 163 of 200
Your neurotypical (non-autistic) score: 55 of 200
You are very likely an Aspie



Aspie talent
This group contains intellectually related Aspie traits. Typical traits are related to interests (e.g. having strong interests; hyper focusing; having periods of contemplation; collecting information; good long term memory related to interests; figuring out how things work; making connections between things; strong-willed; stubborn). Other traits are related to information processing (e.g. noticing details; finding patterns; unusual imagination; solving problems in unusual ways; unique ideas). Some people have special talents (e.g. numbers; language; computers; music).

Diagnostic relation
None, but a high score is related to giftedness.
Your group score: 9.7 of 10 (above average).

Neurotypical talent
This group contains neurotypical intellectual talents. Often these are defined in terms of Aspie disabilities. Typical traits seem to be adaptations to cooperative living (e.g. giving and remembering verbal instructions; learning from others; describing events; summarizing events; taking notes; keeping track of several conversations; learning things on demand; learning by imitation). Other traits include multitasking and attention (e.g. doing several things at the same time; rapidly shifting focus; getting back to things quickly), getting a quick picture of one’s environment (e.g. generalizing; getting the overall picture), remembering where things are, grasping abstract concepts and organizing daily life.

Diagnostic relation
No direct, but many diagnoses like ADD/ADHD seem to be related to a low score
Your group score: 1.7 of 10 (below average).

Aspie compulsion
This group contains obsessive and compulsive Aspie traits. Typical of this group is a preference for sameness (e.g. routines; lists; schedules; sitting on the same seat; going to the same shop; wearing the same clothes; eating the same food; always doing things in the same way). Related traits include getting frustrated when interrupted and a need to prepare oneself before doing new things. Some people have strong attachments to objects and like to collect and organize things and may need precision or symmetry.

Diagnostic relation
A high score is related to Obsessive Compulsive Disorder (OCD).
Your group score: 9.3 of 10 (above average).

Neurotypical compulsion
This group contains socially related compulsive traits. Key traits are to enjoy social interaction (e.g. meeting people; involving others; games; crowds; large social networks; hosting events; being a leader; gossip; cheering). Other traits are related to social conformity (e.g. having views typical of peer group; preferring to socialize with others of the same age and gender; interest for fashions; wearing jewellery; wearing makeup; taking pride in ones appearance, style, image and identity; status seeking; climbing hierarchies).

Diagnostic relation
None.
Your group score: 2.3 of 10 (below average).

Aspie social
This group contain Aspie social traits. Important traits are a highly variable activity level with higher than normal motivation threshold. Other traits include atypical relationship & courtship preferences (partner obsessions; not giving up on relationships; preference for friends of the opposite gender) and sexual preferences. Unusual eating and sleeping patterns as well as having a hard time with authorities and social hierarchy are other traits.

Diagnostic relation
A high score is related to ADD/ADHD, Bipolar and ODD.
Your group score: 7.4 of 10 (above average).

Neurotypical social
This group contains neurotypical social traits. The absence of the traits is often described as a dysfunction. Key traits are adaptations for living in changing social groups (e.g. smalltalk; social chitchat; shaking hands; saying ‘hi’, ‘thank you’ and ‘sorry’). Related traits are adaptations for socializing with strangers (e.g. being comfortable with strangers; enjoying talking face-to-face with strangers; maintaining large social networks; easy to get to know; talking in public; enjoying uninvited guests). Other traits are related to friendships and relationships and expressing feelings in typical ways (e.g. making and maintaining friendships and relationships; looking at people you talk to; enjoying hugs and touch; being emotionally close to others; describing and talking about feelings) and cooperation with others (e.g. using others expertise; working while being observed).

Diagnostic relation
A low score is related to Social Phobia.
Your group score: 1.4 of 10 (below average).

Aspie communication
This group contains communication related Aspie traits. Key traits in this group are related to atypical nonverbal communication (e.g. odd facial expressions; odd posture; odd prosody; being accused of staring; using unusual sounds in conversations; blinking or rolling eyes; clenching fists; grinding teeth; thrusting tongue; blushing). Related traits are stims (e.g. wringing hands; rubbing hands; twirling fingers; rocking; tapping eyes; pressing eyes; fiddling with things; pacing; flapping hands; biting self or others; chewing on things; picking scabs; peeling skin flakes; examining hair of others; singing). Tics are also here and are often confused with stims (e.g. stuttering; sniffing; snorting; coughing; echolalia; echopraxia). Other traits include general communication differences (e.g. not verbalizing thoughts; talking softly or loudly; turning words around; talking to oneself; odd pronunciation; not separating ‘I’, ‘we’ and ‘you’). Some people also prefer to look a lot at people they like and not at all at people they dislike.

Diagnostic relation
A high score is sometimes related to Tourette, but the primary relation is with stimming and unusual communication.
Your group score: 6.3 of 10 (average).

Neurotypical communication
This group contains typical nonverbal communication traits. A key trait is the ability to interpret and show typical nonverbal communication (e.g. facial expressions; body language; courtship; timing; reciprocity; turn-taking; prosody). The absence of these abilities lead to secondary problems (e.g. unaware of how to behave; unaware of boundaries; being misunderstood; missing hidden agendas; being unaware of others intentions; misinterpreting figures of speech, idioms and allegories; literal interpretation; not knowing when to apologize; saying inappropriate things; seemingly poor empathy).

Diagnostic relation
A low score is related to Autism Spectrum Conditions (ASC)
Your group score: 2.3 of 10 (below average).

Aspie hunting
This group contains passive hunting traits. One part of the traits is related to preferred habitats (e.g. slowly flowing water; caves; woods; liking mist or fog). Another part seems to be close-contact hunting traits (e.g. jumping over things; climbing; chasing animals; biting; enjoying spinning in circles; strong grip; strong hands; physical endurance; enjoying rodeo riders). Some other traits are related to sneaking (e.g. sneaking through the woods; sneaking up on animals; walking on toes) and general hunting tactics (e.g. mimicking animal sounds; digging; throwing small things; building traps; fascination for fire; sniffing)

Diagnostic relation
None.
Your group score: 4.7 of 10 (average).

Neurotypical hunting
The traits in this group are related to cooperative hunting. These traits are often described in terms of dysfunctions. Typical traits are recollections of environmental information (e.g. positions of things; scores in games; order of words, letters and digits; map reading) and passing on information to others (e.g. passing on messages; knowing left from right; dates and times of events; remembering appointments and events; reading clocks and calendars; carrying over information between contexts). Other traits are related to trading and exchange with others (e.g. calculating change from a purchase; knowing what to bring to appointments; remembering sequences of past events; remembering formulas; filling out forms).

Diagnostic relation
A low score is related to Dyslexia and Dyscalculia.
Your group score: 4.3 of 10 (average).

Aspie perception
This group contains perception-related Aspie traits. These traits commonly become disabilities, but their core seems to be more sensitive senses (e.g. touch; sound; tactile; smell; taste; light and glare; humidity; changes in air pressure; wind; heat; electromagnetic fields) or less sensitive senses (e.g. pain). Related to this are instinctual reactions to sensory information (e.g. being distracted by sounds; being afraid of motor-bikes; being afraid of floods or fast running streams; disliking stomping). Other traits are difficulty filtering out speech from background noise and using peripheral vision.

Diagnostic relation
No direct, but Autistics often have differences in perception.
Your group score: 9.8 of 10 (above average).

Neurotypical perception
This group contains neurotypical motor abilities and perception traits. The absence of these traits is often referred to as clumsiness. A key trait is the ability to interpret spatial information (e.g. judging distance, speed and acceleration; keeping track of positions of objects; predicting motion; concept of time; optimal pressure to apply). The absence of these skills leads to secondary problems (e.g. poor fine and gross motor skills; poor body awareness; poor body control; problems with ball sports; poor hand-eye coordination; poor balance; poor handwriting; dropping things).

Diagnostic relation
A low score is related to Dyspraxia.
Your group score: 5.0 of 10 (average).

Environment
This group contains traits that seem to be of environmental origin. Typical traits are related to stress and overload (e.g. shutting down; having a meltdown) and consequences of not fitting in (e.g. depression; being bullied; being taken advantage of; low self-esteem; suicidal thoughts; harming oneself; mood swings).

Diagnostic relation
A high score is related to many psychiatric diagnoses and is sometimes required in order to get a diagnosis.
Your group score: 8.8 of 10 (above average).